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Special Needs Resources:
Internet Support Groups


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Special Needs Adoption
· Want to adopt a child with special needs?
Adopt America Network specializes in adoption of special needs children and works in 34 states in the USA.

Adoption Focused
Support Groups, Websites and E-mail Discussion Groups
(Listed Alphabetically by Special Need or Topic)

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


Alcohol Exposure, Fetal
Listname: WEECARE-L
To subscribe follow these instructions:
For additional information or questions send E-mail to:Margie Eaton or visit the website of EEAdopt, the sponsor of the list.
Chineese Special Needs Adoptions
Listname: SNADOPTCHINA
To subscribe follow these instructions:
For additional information or questions send E-mail to:Marla Garr.
Drug Exposure, Fetal
Listname: WEECARE-L
To subscribe follow these instructions:
For additional information or questions send E-mail to:Margie Eaton or visit the website of EEAdopt, the sponsor of the list.
Fetal Alcohol Syndrome / Fetal Drug Exposure
Listname: WEECARE-L
To subscribe follow these instructions:
For additional information or questions send E-mail to:Margie Eaton or visit the website of EEAdopt, the sponsor of the list.
General Interest in Special Needs Adoptions
Listname: AFTLIST
To subscribe follow these instructions:
For additional information or questions visit the website of Adoptive Families Together , the sponsor of the list.
Hepatitis B
Listname: HBV-ADOPTION
To subscribe follow these instructions:
For additional information or questions send E-mail to:Lori Raff.
Post-Institutionalized Children Adopted from Eastern Europe
Listname: PEP-L
To subscribe follow these instructions:
For additional information or questions send E-mail to:Harriet McCarthy or visit the website of EEAdopt, the sponsor of the list.
Post-Institutionalized Children Adopted from Eastern Europe
Listname: PEP-L
To subscribe follow these instructions:
For additional information or questions send E-mail to:Harriet McCarthy or visit the website of EEAdopt, the sponsor of the list.

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Not Specifically Adoption Focused
Support Groups, Websites and E-mail Discussion Groups
(Listed Alphabetically by Special Need)

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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Agenesis of the Corpus Callosum
Listname:(ACC-L)
To subscribe follow these instructions:
For additional information or questions E-mail Gary Schilmoeller
Amputees
Listname: I-CAN
To subscribe follow these instructions:
For additional information or questions visit the website of the list sponsor.
Angelman syndrome
Listname: ANGELMAN
To subscribe follow these instructions:
  • Send an E-mail message to listserv@ucsd.edu and in the body of the message enter:
    "add angelman-l" (Be sure to type everything between the quotes, not including the quotes. Also, note that the letter after the hyphen is a lower case L and not a number one).
For additional information or questions by E-mail click here or visit the website of the list sponsor.
Apraxia
Listname: APRAXIA-KIDS
To subscribe follow these instructions:
  • Send E-mail to: listserv@listserv.syr.edu
  • In the Body of the E-mail type: "SUBSCRIBE APRAXIA-KIDS"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail Sharon Gretz or visit the website of the list sponsor.
Attention Deficit/Hyperactivity Disorder (ADHD)
Listname: ADDPARENTS
To subscribe follow these instructions:
  • Send E-mail to: listserver@ourfriends.com
  • In the Body of the E-mail type: "SUBSCRIBE ADDPARENTS"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail Deborah Ruppert
Auditory Processing Disorders
See: Central Auditory Processing Disorders

Autism, Pervasive Developmental Disorder, Asperger Syndrome
Listname: ASPERGER
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE ASPERGER"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail Ellen Dietrick .
Autism
Listname: AUTINET
To subscribe follow these instructions:
  • Send E-mail to: autinet-request@iol.ie
  • In the Subject of the E-mail type: "SUBSCRIBE AUTINET "
    (Be sure to type everything between the quotes, not including the quotes)
  • In the Body of the E-mail explain to the listowner why you would like to join the list.
For additional information or questions E-mail Peter Wise or visit the website of the list sponsor.
Autism
Listname: AUTISM
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE AUTISM FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail Ray Kopp or visit the website of the list sponsor.
Autism with emphasis on Hyperlexia
Listname: HYPERLEX
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE HYPERLEX FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail Ted Whaley or visit the website of the list sponsor.
Behavioral Issues
Listname: BEHAVIOR
To subscribe follow these instructions:
  • Send E-mail to: listserv@asuvm.inre.asu.edu
  • In the Body of the E-mail type: "SUBSCRIBE BEHAVIOR"
    (Be sure to type everything between the quotes, not including the quotes)

Blindness
Listname: BLINDFAM
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE BLINDFAM "
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail Roger Myers .
Blindness with emphasis on Homeschooling
Listname: BLINDHOMESCHOOLERS
To subscribe follow these instructions:
For additional information or questions E-mail Debbie Day or visit the website of the list sponsor.
Blindness/Visually Impared
Listname: BVI-PARENTS
To subscribe follow these instructions:
 
Brain Injuries
Listname: BI-PEDIA
To subscribe follow these instructions:
  • Send E-mail to: listproc@lists.acs.ohio-state.edu
  • In the Body of the E-mail type: "SUBSCRIBE BI-PEDIA FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail Kim Kang.
Central Auditory Processing Disorders
Listname: CAPD
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE CAPD"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail Jay Lucker .
Cerebral Palsy
Listname: CPPARENT
To subscribe follow these instructions:
For additional information or questions visit the website of the list sponsor.
Cerebral Palsy
Listname: C-PALSY
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE C-PALSY FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail Bill McGarry .
Cleft Palate/Cleft Lip
Listname: CLEFT-TALK
To subscribe follow these instructions:
  • Send E-mail to: listproc@mother.com
  • In the Body of the E-mail type: "SUBSCRIBE CLEFT-TALK FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail Joanne Green or visit the website of the list sponsor.
Deafness
Listname: PARENTDEAF-HH
To subscribe follow these instructions:
  • Send E-mail to: listproc@list.educ.kent.edu
  • In the Body of the E-mail type: "SUBSCRIBE PARENTDEAF-HH FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions send E-mail to the list owner.
Downs Syndrome
Listname: DOWN-SYN
To subscribe follow these instructions:
  • Send E-mail to: listserv@listserv.nodak.edu
  • In the Body of the E-mail type: "SUBSCRIBE DOWN-SYN FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail Bill McGary

Downs Syndrome
Listname: UPSNDOWNS
To subscribe follow these instructions:

  • Send E-mail to: listserv@home.ease.lsoft.com
  • In the Body of the E-mail type: "SUBSCRIBE UPSNDOWNS"
    (Be sure to type everything between the quotes, not including the quotes)

(DYSPHAGIA) Disorders of the Throat/Swallowing
Listname: DYSPHAGIA
To subscribe follow these instructions:
  • Send E-mail to: majordomo@cyberport.com
  • In the Body of the E-mail type: "SUBSCRIBE DYSPHAGIA"
    (Be sure to type everything between the quotes, not including the quotes)

Eczema
Listname: ECZEMA
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE ECZEMA"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail David Hough or visit the website of the list sponsor.
Feeding (Gastrostomy) Tube
Listname: GTUBE
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "subscribe gtube FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions visit this website.
Fetal Alcohol Syndrome
Listname: FASLINK
To subscribe follow these instructions:
  • Send E-mail to: majordomo@listserv.rivernet.net
  • In the Body of the E-mail type: "subscribe faslink "
    (Be sure to type everything between the quotes, not including the quotes, in lower case)
For additional information or questions visit the website of the list sponsor.
Heart Defects
Listname: PD-HEART
To subscribe follow these instructions:
For additional information or questions visit the website of the list sponsor.
Hemiplegia/Cerebral Palsy/Pediatric Stroke
Listname: HEMI-KIDS
To subscribe follow these instructions:
For additional information or questions E-mail the list sponsor or visit the website of the list sponsor.
Hepatitis B
Listname: HEPATITIS-B
To subscribe follow these instructions:
For additional information or questions visit this website.
Hepatitis
Listname: HEPV-L
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE HEPV-L FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail Sara Amber .
Hydranencephaly
Listname: HYDRANENCEPHALY
To subscribe follow these instructions:
For additional information or questions E-mail Barb Aleman or visit the website .
Language Disorders
Listname: C-NET_CHILDRENS_LANG_DISORDERS
To subscribe follow these instructions:
  • Send E-mail to: listserv@listserv.arizona.edu
  • In the Body of the E-mail type: "SUBSCRIBE C-NET_CHILDRENS_LANG_DISORDERS"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail Pedro Carrasquilla .
Learning Disabilities, General Interest
Listname: LD-LIST
To subscribe follow these instructions:
  • Send E-mail to: majordomo@curry.edu
  • In the Body of the E-mail type: "SUBSCRIBE LD-LIST"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail the list owner .
Microcephaly
Listname: MICROCEPHALY
To subscribe follow these instructions:

Neurological Disorders of the Throat(effecting speech, voice, language and swallowing)
Listname: C-NET_CHILDNEURO
To subscribe follow these instructions:
  • Send E-mail to: listserv@listserv.arizona.edu
  • In the Body of the E-mail type: "SUBSCRIBE C-NET_CHILDNEURO"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail Pedro Carrasquilla .
Obsessive Compulsive Disorder
Listname: OCD-L
To subscribe follow these instructions:
  • Send E-mail to: listserv@vm.marist.edu
  • In the Body of the E-mail type: "SUBSCRIBE OCD-L"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail Chris Vertullo .
Premature Birth
Listname: PREEMIE-L
To subscribe follow these instructions:
  • Send E-mail to: majordomo@yarra.vicnet.net.au
  • In the Body of the E-mail type: "SUBSCRIBE PREEMIE-L"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions send E-mail to: Anne Casey or visit the website of the list sponsor.
Premature Birth
Listname: PREEMIETIMES
To subscribe follow these instructions:
For additional information visit the website of the list sponsor.
Premature Birth with emphasis on school age (or older)
Listname: PREEMIE-CHILD
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE PREEMIE-CHILD FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions send E-mail to: Allison & Rick Martin or visit the website of the list sponsor.
Retinopathy of Prematurity (ROP)
Listname: ROP
To subscribe follow these instructions:
  • Send E-mail to: Scott Richards and explain why you would like to join the list.
For additional information or questions E-mail Scott Richards or visit the website of the list sponsor.
Sensory Integration Disorder
Listname: SID
To subscribe follow these instructions:
For additional information or questions E-mail the list owner SPK2WRT SPK2WRT (Speak To Write) listserv is a moderated discussion forum for students Website: http://www.edc.org/spk2wrt

Septo Optic Dysplasia and Optic Nerve Hypoplasia
Listname: SOD-L
To subscribe follow these instructions:

For additional information or questions E-mail Cindy Rose or visit the website of the list sponsor.

Delayed Development of Speech
Listname: LATETALKERS
To subscribe follow these instructions:
For additional information or questions E-mail the list owner.
Spina Bifida
Listname: SB-PARENTS
To subscribe follow these instructions:
  • Send E-mail to: listserv@waisman.wisc.edu
  • In the Body of the E-mail type: "SUBSCRIBE SB-PARENTS FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail the list owner or visit the website of the list sponsor.
Spina Bifida
Listname: BIFIDA-L
To subscribe follow these instructions:
  • Send E-mail to: listserv@mercury.dsu.edu
  • In the Body of the E-mail type: "SUBSCRIBE BIFIDA-L FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail Loren Aman .
Stroke, Pediatric/Cerebral Palsy/Hemiplegia
Listname: HEMI-KIDS
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE HEMI-KIDS FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail the list sponsor or visit the website of the list sponsor.

Sturge-Weber Syndrome/Klippel-Trenaunay Weber Syndrome/Port Wine Stains
Listname: SWS-Support
To subscribe follow these instructions:

  • Send E-mail to: majordomo@mail.serve.com
  • In the Body of the E-mail type: "SUBSCRIBE SWS-SUPPORT FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail Ian Hubling or visit the website of the list sponsor.

Throat, Neurological Disorders of (effecting speech, voice, language and swallowing)
Listname: C-NET_CHILDNEURO
To subscribe follow these instructions:
  • Send E-mail to: listserv@listserv.arizona.edu
  • In the Body of the E-mail type: "SUBSCRIBE C-NET_CHILDNEURO"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail Pedro Carrasquilla .
Disorders of the Throat/Swallowing
Listname: DYSPHAGIA
To subscribe follow these instructions:
  • Send E-mail to: majordomo@cyberport.com
  • In the Body of the E-mail type: "SUBSCRIBE DYSPHAGIA"
    (Be sure to type everything between the quotes, not including the quotes)

Tourette's Syndrome
Listname: TSPARENTS
To subscribe follow these instructions:

For additional information or questions E-mail the list owner.

Tourette's Syndrome
Listname: POV-TWITCH
To subscribe follow these instructions:
  • Send E-mail to: majordomo@igc.org
  • In the Body of the E-mail type: "SUBSCRIBE POV-TWITCH"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions send E-mail to: Jackie Aron .

Tracheostomy
Listname: TRACHTIES
To subscribe follow these instructions:

  • Send E-mail to: listserv@listserv.aol.com
  • In the Body of the E-mail type: "SUBSCRIBE TRACHTIES FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions E-mail Kelly Killough or visit the website of the list sponsor.
Visually Impared/Blindness
Listname: BVI-PARENTS
To subscribe follow these instructions:
For additional information or questions E-mail Sarah Blake or visit the website of the list sponsor.

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General Interest/Miscellaneous Topics
Support Groups, Websites and E-mail Discussion Groups
(Listed Alphabetically by Topic)

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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General Interest in Special Needs Children
Listname: OUR-KIDS
To subscribe follow these instructions:
  • Send E-mail to: listserv@maelstrom.stjohns.edu
  • In the Body of the E-mail type: "SUBSCRIBE OUR-KIDS FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)
For additional information or questions send E-mail to: Randy Ryan or visit the website of the list sponsor.
General Interest in Special Needs Children
Listname: CSHCN
To subscribe follow these instructions:
  • Send E-mail to: majordomo@ichp.edu
  • In the Body of the E-mail type: "SUBSCRIBE CSHCN-L"
    (Be sure to type everything between the quotes, not including the quotes)
For additional information or questions E-mail Syraj Syed or visit the website of the list sponsor.
General Interest in Special Needs Children
Listname: DDFIND-L
To subscribe follow these instructions:
  • Send E-mail to: listserv@vm.sc.edu
  • In the Body of the E-mail type: "SUBSCRIBE DDFIND-L FirstName LastName"
    (Be sure to type everything between the quotes, not including the quotes, and type your real name instead of FirstName LastName)

General Interest in Special Needs Children for Christian Parents
Listname: CP-SK
To subscribe follow these instructions:
For additional information or questions send E-mail to: aftlist-owner@egroups.com or the sponsor of the list.
General Interest in Special Needs Children especially for Fathers
Listname: DADVOCAT
To subscribe follow these instructions:
  • Send E-mail to: listserv@lsv.uky.edu
  • In the Body of the E-mail type: "SUBSCRIBE DADVOCAT"
    (Be sure to type everything between the quotes, not including the quotes)

General Interest in Special Needs Children with a Focus on Homeschooling
Listname: HKWK
The Homeschooling Kids With Disabilities email list is a specialized list focused on homeschooling children with special educational needs.

To subscribe:

  • Go to this webpage and follow the subscription instructions.
For additional information or questions visit this website.

Infectious Diseases
Listname: PKIDS-LIST
Group for parents whose children have chronic hepatitis B, hepatitis C, HIV and other infectious diseases can find each other and find support in a confidential and respectful community.

To subscribe follow these instructions:

For additional information or questions send E-mail to the listowner or visit the website of the list sponsor.
Serious Illnesses
Listname: CARINGPARENTS
To subscribe follow these instructions:
Group for parents with children who have serious illnesses..
Rare Disorders
Listname: RARE-DIS
To subscribe follow these instructions:
Group for parents with children who have rare disorders.
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