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Adopting a Child With Special Needs


Many people still associate adoption with babies. That used to be true, but today the adoption scene is different. Adoption in the 1990's focuses largely on children who have special needs. They are children who, at one time, were thought to be difficult to place or even unadoptable. Experience has shown, however, that there are families who want these children, families for whom these children are their first choice. Those who adopt children with special needs are enthusiastic about the love and happiness that these children add to their families.

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Who Are the Children With Special Needs?

There are forty to fifty thousand children in the United States with special needs who need permanent homes. One of them is Susan.

Susan is an attractive, athletic 13- year-old who attends classes for children with emotional problems. A shy child, she has lived in six foster homes since she was 2. She warms up to people when she gets to know them well.

Mark also waits for a family. This 4- year-old was born with an underdeveloped brain and is blind in one eye. He responds to touch and brightens when he hears music. He needs a family that can provide ongoing care.

Steven, 11, Mike, 9, and Bobby, 4, are close-knit brothers who love to sing gospel tunes. They are lively boys with warm, loving personalities.

All of these children are considered to have special needs. Many of them who wait for families have physical, emotional, or mental disabilities. Some are mentally retarded. Some have been sexually abused. Some have been prenatally exposed to drugs or alcohol or test positive for AIDS. There are children who are school-age or older and brothers and sisters like Steven, Mike, and Bobby, who need a home together. Many are children of color. Most of these children live in foster homes or institutions while they wait for permanent families.

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Who Can Adopt Children With Special Needs?

While agencies differ in their requirements, most consider both single and married applicants for these children. The ages for prospective parents range from 25 to 50, and can be even more flexible depending on the child's age. Most agencies require couples to be married a minimum of 1 to 3 years. Those who apply need not own their homes, be experienced parents, or have separate bedrooms for each child, since children of the same sex can share a bedroom.

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How Can You Learn More About Children With Special Needs?

The most direct approach is to contact your local adoption agencies. There may be both public and private agencies in your community that you can contact to begin gathering more information.

Many agencies keep photo-listing books with photographs and brief descriptions of available children. Prospective adopters can peruse the books to learn more about the kinds of children who are waiting and, perhaps, locate a child to adopt.

Parent support groups are a valuable resource. Some maintain photo-listing books and have close relationships with agencies and adoption exchanges that match waiting children and parents. Families who have adopted can share experiences and guide interested families through the adoption process. Listings for these groups can be found under "Adoption" in the Yellow Pages of the telephone directory or by contacting the National Adoption Information Clearinghouse.

Libraries can provide general adoption information. Many have books on adoption, and an increasing number are keeping articles and materials on current trends in adoption, including children with special needs, single parent adoption, and transracial adoption.

Newspapers and television stations often focus on children with special needs through "Waiting Child" columns and programs. These features usually appear regularly and highlight children in the communities they serve who need permanent homes.

The Clearinghouse has hundreds of articles on all kinds of adoption topics in its bibliographic data base. If a particular aspect of special needs adoption interests you, you can request a "search" of that data base and receive abstracts of relevant articles.

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What Is the Procedure?

The search for a child begins, in most cases, at the agency level. A prospective adopter can contact an adoption agency and express an interest in adopting a child with special needs. A home study (a series of meetings between the family and social worker to assess the potential for a successful adoption and learn more about adoption) will be done. Once this is completed, the agency will let the family know about available children who may be appropriate for them. Since many children with special needs are legally free for adoption and are waiting for permanent homes, there may be only a short wait for a child.

State agencies and their adoption exchanges receive names of waiting children from both public and private agencies. Exchanges, which provide services free of charge, do not have children in their custody, but take referrals and try to facilitate placements. As a person interested in adopting a child with special needs, you may want to contact one or more exchange. You may be able to register yourself or have your social worker do it for you.

Regional and national exchanges take referrals of children from several States and circulate information about adoption. A listing of these resources can be obtained from the Clearinghouse.

A national photo-listing book, Children Awaiting Parents, Inc., has listings of children throughout the United States who need wider exposure. Agency workers who send in the child's name must be willing to place a child across State lines. This photo-listing book contains information on 500 children and has biweekly updates. Your local adoptive parent groups or adoption agencies may have this book. For further information you can contact Children Awaiting Parents, Inc., 700 Exchange Street, Rochester, New York 14608 (716-232-5110).

The National Adoption Center, a private, nonprofit organization that promotes adoption opportunities for children with special needs, operates a telecommunications network. This computer-based network links parent groups, agencies, and exchanges. A family who has completed an adoption home study may register with the Center. Contact the Center at 1500 Walnut Street, Suite 701, Philadelphia, PA 19102, (215) 735-9988 or 1-800-TO-ADOPT.

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What Is a Home Study?

A home study, conducted by an adoption agency, is a series of meetings between a social worker and prospective adopter that provide an opportunity to learn more about adoption and parenting and to prepare for adoption. The home study process varies from agency to agency. Some conduct individual and joint interviews with a husband and wife or individual interviews with a single person who wants to adopt. Others conduct group home studies with several families at one time, including single and married applicants. A few agencies ask applicants for written information about themselves and their life experiences.

In general, the group sessions (usually six to eight) cover topics such as parenting skills, the pros and cons of adoption, ways to introduce extended family to adoption, and ways to help the child adjust to his or her new family. Part of the home study includes at least one home visit by an agency worker. This helps the worker determine if the home environment will be safe and nurturing for the child. It also gives the family an opportunity to discuss its concerns and needs with the worker.

When the adoption study has been completed, the agency will often present photographs and descriptions of children who are available to the family and will follow up if the family shows an interest in a particular child.

Families say that they find the home study process beneficial; it allows them to consider deeply their personal feelings about adoption and to explore their readiness for a child.

For more information about home studies, consult the Clearinghouse factsheet, "The Adoption Home Study Process."

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What Kinds of Services Are Available Before and After the Adoption?

Before adopting a child, the family works with an adoption agency and is assigned to a social worker. The worker counsels the family, preparing it to care for a child with special needs. In some cases those who have participated in the home study as a group meet to discuss common issues. Sometimes social workers will refer families to special interest organizations such as the Association for Retarded Citizens or the United Cerebral Palsy Foundation. Often parents who have adopted a child with a similar condition are helpful in sharing their experiences.

After placement, most agencies offer post adoption services for the family. These can include support groups, individual and family counseling, and workshops on specific topics of parenting. If the child was receiving therapy or special schooling before the adoption, he or she will usually continue with it. The family social worker keeps in contact to help ease the adjustment and offer guidance.

Adoptive parent groups can also provide support and insight. (See the Clearinghouse factsheet on parent groups entitled "The Value of Adoptive Parent Groups.")

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What Will It Cost to Adopt?

Usually, no fee or only a very moderate one is charged for adopting children with special needs. Financial assistance for the care and services required by such children is available to adoptive parents through Federal (Title IV-E program under the Social Security Act) and State programs. Each State's program is different, and it is very important for families interested in obtaining adoption subsidies to contact their local department of social services to determine what is available in their State.

Federal Title IV-E Adoption Assistance Program

Under the Federal Title IV-E adoption assistance program, payments to the parents of an eligible child are available for the ordinary and special needs of the child. Such payments are not designated for a specific purpose such as medical expenses, maintenance (that is, living expenses), or special services. The funds may be used for any identifiable need of the child. The maximum payment may not exceed the amount that would have been paid for maintenance for that child if he or she were in a foster home.

In order for a child to be eligible for Title IV-E adoption assistance, he or she must have been eligible for Temporary Assistance for Needy Families (TANF) (formerly Aid to Families with Dependent Children) or Supplemental Security Income (SSI) programs under the Social Security Act before adoption. A child for whom Title IV-E adoption assistance is provided is automatically eligible for medical assistance under Title XIX (Medicaid) and for social services under the Title XX plan in each State, as though he or she were an AFDC recipient. Payments can continue until the child reaches age 18, or until age 21 if the State determines continuation is warranted, and they continue in the event the family moves to another State.

Adoptive parents do not have to meet any financial eligibility criteria in order to receive adoption assistance for the Title IV-E eligible child. The parents may decide, however, not to receive money payments even though the child is eligible. That decision would not interfere with the child's eligibility for Medicaid or Title XX services, or the parents' eligibility for reimbursement of nonrecurring adoption services.

State Adoption Subsidy Programs

State adoption subsidy programs provide assistance for children who are not eligible under the Federal Title IV-E program. Adoption subsidies take on various forms in the different States, depending upon the child's needs and the State agency's program, and are generally of three types: medical, maintenance, and special services.

Medical subsidies cover some or all the costs related to a child's specific medical condition that are not covered by the family's health insurance, as well as associated therapy, rehabilitation, and special education. Some States provide medical assistance through Medicaid which also covers health care needs not covered by the adopting family's health insurance policy.

Maintenance or support subsidies are direct payments to the adopting family to help cover the child's living expenses.

Special service subsidies are usually one-time payments to cover a child's emergency or extraordinary need; less often, they are repeated payments for services not covered by the medical or maintenance subsidies. It is important to check with the State to determine what is an allowable cost.

Under both Federal and State programs, adoptive parents of a child with special needs are eligible for a one-time payment of nonrecurring adoption expenses incurred in connection with adoption. Such expenses include reasonable and necessary adoption fees, court costs, attorney fees, and other expenses directly related to the legal adoption of the child with special needs.

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Do Adoptions Succeed?

Most adoptions (approximately 90 percent) are happy and successful, and parents say that the children they adopt bring joy and richness to their lives. The adoptions that do not work out often involve children who have serious behavior problems because of trauma they suffered earlier in life. Many families may need a variety of post adoption services such as counseling, special schooling, or therapy. More services like these are being offered by agencies, and there are many parent support groups that families find helpful when they face difficult situations with their adopted children.

A mother from New Jersey speaks for most adoptive parents when she describes her 13-year-old son, Carlos, who has cerebral palsy. "He is a precious jewel and I wouldn't give him up for anything," she says beaming.

This article was written by Mady Prowler of the National Adoption Center in 1989. Revised in 1995 by Debra G. Smith of the National Adoption Information Clearinghouse.
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Internet links and corrections added by Adoptions.com 2001- 2008

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Recommended Readings

Alexander-Roberts, Colleen. The Essential Adoption Handbook. Dallas, TX: Taylor Publishing, 1993.

Blome, Wendy Whiting, Pasztor, Eileen Mayers, and Leighton, Maureen. Homeworks #3: Helping Children and Youths Manage the Impact of Placement. Washington, DC: Child Welfare League of America, 1993.

Chasnoff, Ira J., M.D. "Guidelines for Adopting Drug-Exposed Infants and Children." Chicago: National Association for Perinatal Addiction Research and Education (NAPARE), 1992.

Gilman, Lois. The Adoption Resource Book. New York: Harper & Row, 1992.

Glidden, Laraine Masters, editor. Formed Families: Adoption of Children with Handicaps. New York: Haworth Press, 1990.

Jewett, Claudia L. Adopting the Older Child. Boston: Harvard Common Press, 1978.

Marindin, Hope, compiler and editor. The Handbook for Single Adoptive Parents, 5th edition.Chevy Chase, MD: Committee for Single Adoptive Parents, 1992.

McNamara, Bernard and McNamara, Joan. Parent Workbook of the Safe- Team Curriculum: Preparation and Support for Families Adopting Sexually Abused Children. Greensboro, NC: Family Resources, 1990.

Pasztor, Eileen Mayers and Leighton, Maureen. Homeworks #1: Helping Children and Youths Manage Separation and Loss. Washington, DC: Child Welfare League of America, 1993.

Pasztor, Eileen Mayers and Leighton, Maureen. Homeworks #2: Helping Children and Youths Develop Positive Attachments. Washington, DC: Child Welfare League of America, 1993.

Rosenthal, James A. and Groze, Victor K. Special-Needs Adoption: A Study of Intact Families. New York: Praeger, 1992.

Schooler, Jayne E. The Whole Life Adoption Book. Colorado Springs, CO: Piñon Press, 1993.

Ward, Margaret and Tremitiere, Barbara. Kids in Batches: Placing Sibling Groups for Adoption. York, PA: Tremitiere, Ward and Associates, 1990.

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This material may be reproduced and distributed without permission; however, appropriate citation must be given to the Child Welfare Information Gateway (formerly the National Adoption Information Clearinghouse).

For more information, contact the Child Welfare Information Gateway (formerly the National Adoption Information Clearinghouse) at info@childwelfare.gov.

Internet links added by Adoptions.com 2001- 2008


Last update: March 6, 2008 bkndbar.gif

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